Encouraging the Chronically Ill Moms in Your Playgroup
submitted: Aug 19th 2008 |
by: LisaCopen |
Total views: 1 |
Word Count: 852 |
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Mommy moments come in all forms of days at the park, birthday parties with streamers, and gymnastics classes. All of these provide the perfect opportunity for mothers to let their little ones burn some energy as well as share in their latest challenges. As the amount of women who live with chronic illnesses such as diabetes and rheumatoid arthritis, continues to grow, however, so does the ability to always participate in these spontaneous mommy moments.
For example, according to the National Fibromyalgia Association, fibromyalgia (FM) experts estimate that about 10 million Americans and approximately 5 percent of the population worldwide suffer with FM, one of the fastest growing auto-immune diseases in the USA. I recently attended an adoptive mom's playgroup and within this niche group, three out of the six of us had chronic illnesses. Being aware of a friend's limitations and challenges, acknowledging them, and just asking questions, can make a huge impact in their ability to participate and feel comfortable with their peers.
[1]. Find out the best times of day for play-dates or activities. This will vary from season to season (weather and heat can affect it a great deal); and it also is different from one illness to another. For example, for some moms, mornings are good and afternoons are exhausting; for others they aren't moving or out of PJs before the clock strikes noon.
[2] Be understanding if she has to cancel, rather than bombarding her with guilt. Coping with a chronic illness means that every day is unpredictable. Last week I did nothing other than take a step and my knee locked up for four days. I did all the heat and ice therapies, took extra medication and tried not to complain. But all my plans were cancelled with no advance warning.
[3] Ask her to clarify what she's comfortable doing. For example, you might say, "How far do you want to walk today?" and try to accommodate. Even though you can see the park from your house two blocks away, she may not be bale to make it. Stairs may be impossible, and I won't even take escalators any more because of my knees, so take the elevator with her. Walk at her pace, recognizing that she may have to take rest stops every few minutes even though you've only walked fifty feet. Do her a huge favor and chase after her kids for a few minutes. Standing for longer than a couple minutes may also be a challenge. Despite the pain of walking, it's better for me than standing. Even though the line at the carousel looks like it's only five minutes, she may need you to offer to stand in line and then let her jump in beside you at the last minutes.
[4] Ask polite questions about her illness, such as "what is your greatest challenge?" Avoid telling her about the cures you've heard for her illness; the products you may sell that could help her; or about your mother's cousin's sister who has the same illness but still manages to raise five children and work full-time.
[5] Simple things that may be difficult for her. For example, if you go to the beach, ask her if she'd like to be dropped off with some stuff and save you a spot. She may not be able to plop down on the hard sand so remember to bring a few lawn chairs so she isn't the only one two feet above the others. Most people on medication need shade and limited sun exposure. And don't expect her to carry the cooler, the poodle, the beach toys and watch the twin 2-year-olds while you park the car. While you don't want to make her feel helpless, and she doesn't want the attention, be aware that she may need some extra considerations.
[6] Don't assume that she can take care of your children unless she volunteers. Watching kids is exhausting and just taking care of her own may be all she can handle for the moment. Plus, if your kids play in the street, when a car comes she's not going to be able to jump three tricycles and sprint to grab their little hands nearly as fast as you could.
[7] Plan things that she can participate in. Even though you may think nothing of inviting her to your stroller exercise group, and mommy and me aerobics classes, these are not likely options for her. Discover what kinds of things she likes to do and then see if you can join her. And don't try to set a record for the longest outing. Keep the activities under three hours or at least let her know that she's welcome to go whenever she wants. You may like six hours watching the elephants, but she's going to need to get home and recover from the outing. Don't try to encourage her to stay longer by saying "A little more exercise might really help you feel better!"
[8] Lastly, tell her what every mom longs to hear: "I don't know how you do it. I really admire your perseverance and strength. You're my hero.
About the Author
Download 40 free pages of "Beyond Casseroles: 505 Ways to Encourage a Chronically Ill Friend" by Lisa Copen when you sign up for HopeNotes chronic illness ezine at Rest Ministries. Lisa is the director of Invisible Illness Awareness Week.
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